The fact that SickKids hospital has an actual clinic for this rare disorder speaks volumes to the knowledge and expertise found there. Even when Maya was admitted for a completely unrelated medical problem, the care she received was outstanding. Dr. Dell and Jennifer Leaist, our nurse, and Donna Wilkes, researcher from the PCD clinic, are the most professional and supportive people anyone can find.
To watch your child go through any illness is difficult. When that illness is a chronic one that there is no cure for can be quite devastating. Maya's family is one of the lucky ones. At least they know what her illness is and have experts who are providing quality care. Maya's family and friends want to not only give back to the hospital but to advance research into this rare disorder.
See our support letter from SickKids.
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